Another important objective of Rare Disease Day is to advocate for improved access to diagnosis, treatment, and care for people with rare diseases. Many people with rare diseases struggle to obtain a diagnosis, as healthcare professionals may be unfamiliar with the condition or may not have access to the necessary diagnostic tools. Even when a diagnosis is obtained, treatment options may be limited, expensive, or unavailable in some regions. Rare Disease Day seeks to raise awareness of these issues and to advocate for better access to healthcare services for people with rare diseases.
We at Delta Medical every year support Rare Disease Day with information, emphasizing the importance of drawing public attention to this problem.
Rare Disease Day also provides an opportunity for people living with rare diseases and their families to connect with others who share their experiences. The day is marked by a variety of events and activities, including conferences, webinars, social media campaigns, and community gatherings. These events offer a chance for people to share their stories, learn from others, and build a sense of community and support.
At Delta Medical every year we support Rare Disease Day with information, emphasizing the importance of drawing public attention to this problem.
For more information please visi https://www.rarediseaseday.org/
