Rare Disease Day is an annual observance held on the last day of February to raise awareness about rare diseases and their impact on individuals and their families. This day is an opportunity to highlight the challenges faced by those living with rare diseases, including difficulties in obtaining a diagnosis, limited access to treatments, and social isolation.
Understanding the Impact of Rare Diseases and the Challenges Faced by Those Living with Them
The concept of Rare Disease Day was first introduced in Europe in 2008, and it has since grown into a global movement. The day is now observed in more than 100 countries around the world, with the goal of raising awareness and improving the lives of people with rare diseases.
One of the key objectives of Rare Disease Day is to raise awareness about the prevalence of rare diseases. Although individual rare diseases may affect only a small number of people, there are more than 7,000 rare diseases that affect an estimated 300 million people worldwide. By raising awareness, Rare Disease Day aims to help people understand the impact of rare diseases and the challenges faced by those living with them.
Building a Sense of Community and Support for Individuals and Families Living with Rare Diseases
Another important objective of Rare Disease Day is to advocate for improved access to diagnosis, treatment, and care for people with rare diseases. Many people with rare diseases struggle to obtain a diagnosis, as healthcare professionals may be unfamiliar with the condition or may not have access to the necessary diagnostic tools. Even when a diagnosis is obtained, treatment options may be limited, expensive, or unavailable in some regions. Rare Disease Day seeks to raise awareness of these issues and to advocate for better access to healthcare services for people with rare diseases.
We at Delta Medical every year support Rare Disease Day with information, emphasizing the importance of drawing public attention to this problem.
Rare Disease Day also provides an opportunity for people living with rare diseases and their families to connect with others who share their experiences. The day is marked by a variety of events and activities, including conferences, webinars, social media campaigns, and community gatherings. These events offer a chance for people to share their stories, learn from others, and build a sense of community and support.
At Delta Medical every year we support Rare Disease Day with information, emphasizing the importance of drawing public attention to this problem.